Yeida Soto, 34, is a resident of New Britain Connecticut. She was officially diagnosed with Hermanksy-Pudlak Snydrome at the age of 28, and since her diagnosis has been an active member of the HPS Network. The HPS Network is a non-profit organization dedicated to raising awareness, education, and funding research to find a cure for Hermanksy-Pudlak Syndrome. Santos is featured in “Rare,” the new documentary about the syndrome.